This site has been made by Gus' friends for a couple of reasons. The primary aim is to try and find parents of children that have had Russell's Syndrome and get in touch with Doctors, Professors, Consultants etc that have knowledge and experience of Optic Glioma brain tumours and Russell's Syndrome. Also the site allows friends and family to leave messages of support for the Lilley family and read updates on Gus' health.You can help Gus by sending the link to this website to as many people as possible - we are trying to reach parents, support groups and those in the medical profession that have some experience with this disease. Right now Gus needs all the love and prayers you can offer, if people all around the world can send him their love I'm sure it can do wonders.
The Lilley family are eternally grateful for the support they have received so far - you can help them by sharing your experiences of coping with children that have serious illnesses, offering advice or by simply letting them know that you are thinking of them at this difficult time. Please go to Leave a Message.
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