Gus was born on June 18th 2003 in London. Last year in August he moved to Dinan in France with mum Tanya, dad Ed and big sister Amelia. Gus is the sunshine of the family, the most gorgeous, cute and smiley boy you can imagine.Sadly he was diagnosed with a brain tumour and Russell's Syndrome on March 5th 2004. The Lilley family and their friends and family are doing everything they can to find out more about all the possible treatments that are available to treat this devastating and rare disease.
Gus had 6 months of chemotherapy - Carboplatin and Vincristine - but unfortunately it had no effect on the growth of the tumour. They then travelled to Houston in America to try a different kind of treatment - Antineoplastons. The family have now returned to England to continue the treatment.
