Leave a Message
Please leave your message of love, support, advice and research of the disease below. (info on pioneering cures welcome!)
If you wish to pass your e-mail address on to the Lilleys please e-mail them at info@guslilley.com
Click on the forum you are interested in below to read and leave comments.
Research Information on Russell's Syndrome
If you have any medical knowledge of this Syndrome (it's not related to Russells Silver), patients with this disease, knowledge of treatments etc please leave a message here.
Personal Messages for Tanya & Ed
Please jot down your notes of support, love and prayers for the Lilleys.
Advice from Parents
If your child has suffered a serious illness, especially if it was Russell's Syndrome please leave any advice or information here.
Useful Links
If you know of any useful websites for Support Groups, Medical Information etc please post them here.
